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Refined by: subject: Informed Consent remove
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Consent insufficient for data release.

Science (New York, N.Y.), Vol.364(6439), pp.445-446 [Peer Reviewed Journal]

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Genome sequencing in research requires a new approach to consent.

Tidsskrift for den Norske laegeforening : tidsskrift for praktisk medicin, ny raekke, December 1, 2015, Vol.135(22), pp.2031-2032 [Peer Reviewed Journal]

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If you build it, they will come: unintended future uses of organised health data collections

NFR/238999 [Peer Reviewed Journal]

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The challenges of the expanded availability of genomic information: an agenda-setting paper

Borry, Pascal; Bentzen, Heidi Beate; Budin-Ljøsne, Isabelle; Cornel, Martina C. Howard, Heidi Carmen; Feeney, Oliver; Jackson, Leigh; Mascalzoni, Deborah; Mendes, Álvaro; Peterlin, Borut; Riso, Brigida; Shabani, Mahsa; Skirton, Heather; Sterckx, Sigrid; Vears, Danya; Wjst, Matthias; Felzmann, Heike (2017). The challenges of the expanded availability of genomic information: an agenda-setting paper. Journal of Community Genetics 9 (2), 103-116 [Peer Reviewed Journal]

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Dynamic consent: a potential solution to some of the challenges of modern biomedical research

Budin-Ljøsne, Isabelle; Teare, Harriet J. A. Kaye, Jane; Beck, Stephan; Bentzen, Heidi Beate; Caenazzo, Luciana; Collett, Clive; D’Abramo, Flavio; Felzmann, Heike; Finlay, Teresa; Javaid, Muhammad Kassim; Jones, Erica; Katić, Višnja; Simpson, Amy; Mascalzoni, Deborah (2017). Dynamic consent: a potential solution to some of the challenges of modern biomedical research. BMC Medical Ethics 18 , [Peer Reviewed Journal]

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Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research

PLoS ONE, 2019, Vol.14(9) [Peer Reviewed Journal]

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by this Author/Contributor:

  1. Bentzen, Heidi Beate
  2. Budin-Ljøsne, Isabelle
  3. Mascalzoni, Deborah
  4. Shabani, Mahsa
  5. Felzmann, Heike

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